Medicaid Resource Center

ANCOR advocates to strengthen access to services, including protecting Medicaid from cuts that would harm community-based services for people with I/DD. The resources provided below will support you in taking action to protect and strengthen services and learn more about how Medicaid services support people with I/DD.

The Latest

Summary of Medicaid Provisions in H.R. 1

On July 4, 2025, the budget reconciliation bill, H.R. 1, was signed into law, cutting almost $1 trillion in Medicaid funding. This summary provides an overview of key provisions impacting the Medicaid program.

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Implementation Timeline: Access Rule and Budget Reconciliation Law

This timeline summarizes the major provisions of the HCBS Access Rule and the 2025 Budget Reconciliation Law and their corresponding implementation date.

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Fact Sheet: Program Integrity in the Medicaid HCBS Program

This fact sheet outlines why investing in HCBS is necessary to preserving Medicaid program integrity.

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Medicaid Supports People with Disabilities

Community-Based Services for People with I/DD

These critical services help people with I/DD to live full and independent lives in their communities, but access is at risk.

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Introduction to I/DD Services

All the basics about home- and community-based services in just two minutes.

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Strengthening Home and Community-Based Services

Fact Sheet: Recognizing the Role of Direct Support Professionals Act

An overview of why a Standard Occupational Classification (SOC) for DSPs is important.

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Fact Sheet: The HCBS Relief Act

An overview of how a 10-percentage-point increase in FMAP for home and community-based services would enable states and providers to strengthen the direct support workforce and ensure better access to I/DD services.

The HCBS Relief Act
Before You Cry ‘Fraud’: What DOGE’s Open-Source Medicaid Data Is (and Isn’t)

An article from "The 80 Million" about why DOGE’s Medicaid data drop should have been a good news story, but it is being used to fuel reckless speculation about fraud in Medicaid.

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What Newly Released Medicaid Data Do and Don’t Tell Us

An article from KFF providing an overview of the HHS DOGE Medicaid dataset release.

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The Truth about Waste and Abuse in Medicaid

A blog post from the McCourt School of Public Policy at Georgetown University that illustrates why claims of widespread waste, fraud and abuse in Medicaid are simply false.

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Medicaid Cuts Harm People with Disabilities

Impacts of Medicaid Cuts

People with I/DD, their families, community providers and state lawmakers will all be impacted by state cuts to community-based services due to federal Medicaid funding reductions.

Here's Why
Fact Sheet: Changes in State Financing Mechanisms for Medicaid Programs

The budget reconciliation bill signed into law on July 4, 2025 makes changes to two important state funding mechanisms: provider taxes and state-directed payments.

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Medicaid Work Requirements & People with Disabilities

Medicaid work requirements not only waste millions of dollars on expensive tracking systems and overhead costs, but they are extremely burdensome for beneficiaries to navigate and for states to administer.

Here's Why
FAQs: Medicaid Cuts & Community Services

Get the answers to some of the questions we hear most frequently regarding how cuts to Medicaid will harm disability services.

Browse FAQs
Report: America's Direct Support Workforce Crisis

A longstanding shortage of direct support professionals has led to closures of critically needed services and a denial of access to community.

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How Medicaid Cuts Reduce Access to Care

Understand how federal Medicaid cuts will massively cut federal funding to states.

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Survey Results: State Perspectives on Potential Medicaid Disability Service Reductions

Fielded in fall 2025, this Center for Health Care Strategies survey provides insights into how states are preparing for potential funding reductions to disability services and where they anticipate the greatest challenges.

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History Repeats? Faced With Medicaid Cuts, States Reduced Support For Older Adults And Disabled People

An article from HealthAffairs that details how looming cuts to Medicaid will create a ripple effect that will spread across state programs.

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Medicaid Supports the Economy

The Role of Disability Service Providers in the New York State Economy

A report from the Rockefeller Institute details a study of disability services in New York that found the economic impact of those services alone was double the investment made by the state into those services.

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Medicaid's Impact on Health Care Access, Outcomes & State Economies

Research from the Robert Wood Johnson Foundation shows that Medicaid plays an enormous role in state economies as the single largest source of federal funding to almost every state, comprising two-thirds of all federal grants to states on average.

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The High Cost of Undervaluing Direct Care Work

Research from the Main Center for Economic Policy details the far-reaching costs of undervaluing the direct care workforce in Maine.

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More Data & Expert Analysis

2026 Case for Inclusion Data Snapshot

A report from United Cerebral Palsy (UCP) and ANCOR found modest but meaningful improvements in the workforce that supports people with I/DD, alongside new federal policy changes that could jeopardize that progress.

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State Medicaid Fact Sheets

These State Medicaid fact sheets from KFF provide a snapshot with key data for Medicaid in every state related to current coverage, access and financing, as well as a politics section for each state.

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NCI State of the Workforce

The annual NCI State of the Workforce collects comprehensive data on the DSP workforce providing direct supports to adults (age 18 and over) with I/DD.

View the Data
State of the States in I/DD

From the KU Center on Developmental Disabilities, The State of the States in Intellectual and Developmental Disabilities project was initiated in 1982 to investigate the determinants of public spending for I/DD services in the United States.

Explore the Data
RISP Technical and Topical Reports

The Residential Information Systems Project (RISP) has gathered, maintained, and analyzed longitudinal data on Medicaid funded long-term supports and services (LTSS) for people with intellectual and developmental disabilities (IDD) since 1977.

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U.S. Medicaid Enrollment by Congressional District

From KFF, an interactive map that illustrates how many people are enrolled in Medicaid and what percentage of the population is enrolled in Medicaid for each congressional district

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Direct Care Workers in the United States: Key Facts 2024

A report from PHI that shows that community providers, funded through Medicaid, are a top driver of job creation with the direct care workforce being the fastest-growing profession over the next decade.

Find the Facts