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New Toolkit to Improve Health Care for Adults with IDD

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New Toolkit to Improve Health Care for Adults with IDD

August 14, 2014

A new toolkit was released by the Office of Disability Employment Policy on their disability blog. The toolkit is a response to the unique health care needs of the adult intellectual and developmental disabilities (IDD) population. 

The toolkit offers best-practice tools and information regarding specific medical and behavioral concerns of adults with IDD, including resources for patients and families. The website is divided into four categories: General Issues, Physical Issues, Health Watch Tables, and Behavioral and Mental Health Issues.

General Issues involve topics such as communicating effectively with people with communication barriers, issues of informed consent with individuals with IDD and a downloadable form detailing information about that day’s visit to the doctor.

The section on Physical Issues includes downloadable forms for a cumulative patient profile and preventive care checklists for men and women, with special emphasis on matters that might be specific to people with developmental disabilities.

The Health Watch Tables provide guidance on specific health concerns for people with autism, Down syndrome, Fragile X, Prader-Willi syndrome, Williams syndrome and 22q11.2 deletion syndrome. A Health Watch Table on fetal alcohol spectrum disorders will be added soon.

The section on Behavioral and Mental Health Issues offers risk assessment tools, crisis management and prevention plans, downloadable forms for the health care provider and the caregiver to help address behavioral or emotional concerns, and guidance on psychiatric symptoms, as well as psychotropic medications.

The toolkit is accessible via personal computer, tablet, and smartphones.